Monday, June 7, 2010

Hey Everybody

Thank you all so much for the wonderful emails and calls and comments over the past couple weeks. Every bit of it has helped tremendously, it's proved beyond the tiniest doubt that you all are there for me when I need you the most, and I am more than thankful for every one of you.

I don't really have any more news than I did before about my sister. The surgeon wants her to have an MRI Monday, but she's terribly claustrophobic. She's trying to find a facility that has an open MRI; so far, there's only one. They gave her a sedative pill she can take before the procedure, but even the thought of being in that tube paralyzes her with a fear stronger than that of the disease.

Once she has the MRI, they'd wait 7-10 days before performing surgery. They don't know if she'll have to have radiation or chemo, if either, after the surgery. That'll be determined afterwards. She's pretty sure she'll have a mastectomy because she says she doesn't think she could go through this again. Can't blame her. You know, she's the same age my mother was when she had hers. Bitter irony, eh?

What scares me now, too, is what I wrote about in the poem. Three out of five original family members have had cancer. What kind of odds are these? Shitty ones, that's what kind. Not only am I worrying about my sister and how she'll respond, but I'm also worrying about myself, and am I going to end up in the same shape? My dad had leukemia, then the breast cancer in my mom and now my sister. And I know my own health isn't great. I used to say jokingly that it was a 'done deal' that I'd end up with it in some form eventually. But the joke's over. I'm petrified of my chances now.

All I can do about it all is pray, you know? And see my doctor when I'm supposed to go. Which I do. Both of those.

But it's always in the back of my mind.

5 comments:

ergoproxy said...

I have a friend who is incredibly claustrophobic and had to have an MRI, first time they tried was too bad for her to stay in it but then she found the sedative and wearing a sleeping mask made it bearable. She also got them to remove the pillow usually under your head and I think just have a small folded towel, so her face was further from the "roof" of it. I hope she manages ok.
I know what you mean about it in the back of your mind but remember you can't let it rule your thoughts. It is a scary thing *hug*

Welshie said...

Goodness Jen I had no idea about your sister. I'm so, so sorry to hear about that.
The initial shock when you're told is horrific isn't it, but Jen you do gradually get used to the fact that your sister has cancer and you deal with it. I'm not gonna lie it's going to be a very difficult time for you all but you'll get through it.

It's very important that you look after yourself now Jen and I'm talking from experience here. You see when my sister was diagnosed she moved in with me, we just thought it would be easier that way. I took months off work to look after her. Well I don't mind admitting that it nearly broke me Jen. It was too much. I tried to do everything and ended up a complete wreck. Do as much as you can Jen but make sure that your health doesn't suffer as well.

Try not to worry about your chances of getting it, be aware, but don't let it rule you life. Something like this changes your life but it doesn't always have to be negative. It makes you realise that life is for living, don't worry about trivial things, enjoy life.

Please give your sister my best wishes Jen. Tell her that there's a lot of good thoughts being sent out to her from a tiny corner of Wales.
Also tell her not to be too despondent if she has to have Chemo and radiation. Yes Chemo can be very unpleasant but if it gets rid of the cancer then it's worth it.
This time last year my sister could hardly walk up the stairs, yesterday she walked up Mount Snowdon! That's a long, long walk Jen! What a difference a year makes.
Tell her to never lose hope.

I'll be with you in spirit every step of the way Jen.

Take care

Wendy/6/Anon616 nsi said...

Hi Jen!

I just wanted to check in with you and see how your sister's surgery went.

I hope everything went well and she's already started her full and complete recovery.

I was reading your blog post and wondered if you ever thought about the breast/ovarian cancer screening? Not just the self exams and mammograms; but, the actual genetic screening (BRCA1 or BRCA2) where they determine if you carry the actual cancer genes.

I know the tests can't you give a 100 percent "yes, you will get breast/ovarian cancer" or a "no, you will not get breast/ovarian cancer"; but, they are other helpful tools in the fight against cancer and they do give women (who test positive) the option of taking preventive measures.

Some consider those measures drastic. But, of the women I've seen interviewed or read articles about, none of them regretted having their breast (or ovaries) removed before being diagnosed with breast (or ovarian) cancer.


Most of these women had a family history of cancer, as you do.

They said having the preventive (removal) surgery took the worry about one day developing the disease(s) away from them.

Anyway, that's just something to think about!

Please give my best wishes to your sister!!!!

Hugs and Much Love,
xoxo,
6/Wendy

Wendy/6/Anon616 said...

Hi Jen!

I just wanted to check in with you and see how your sister's surgery went.

I hope everything went well and she's already started her full and complete recovery.

I was reading your blog post and wondered if you ever thought about the breast/ovarian cancer screening? Not just the self exams and mammograms; but, the actual genetic screening (BRCA1 or BRCA2) where they determine if you carry the actual cancer genes.

I know the tests can't you give a 100 percent "yes, you will get breast/ovarian cancer" or a "no, you will not get breast/ovarian cancer"; but, they are other helpful tools in the fight against cancer and they do give women (who test positive) the option of taking preventive measures.

Some consider those measures drastic. But, of the women I've seen interviewed or read articles about, none of them regretted having their breast (or ovaries) removed before being diagnosed with breast (or ovarian) cancer.


Most of these women had a family history of cancer, as you do.

They said having the preventive (removal) surgery took the worry about one day developing the disease(s) away from them.

Anyway, that's just something to think about!

Please give my best wishes to your sister!!!!

Hugs and Much Love,
xoxo,
6/Wendy

Anon616 said...

I'm back all signed in and everything!

~~Here's a link to the National Cancer Institute site where they explain more about the genetic testing (if any of you would like to read more).~~

And, OOOPS! Sorry for the double post above!

xoxo (again),
Wendy